Study Title:
The lived experience of children with congenital upper limb differences as they navigate the social context: A phenomenological study
Study Location:
USA and Canada (I can fly to meet tween in person)
Research Objectives:
Main Research Question
What is the lived experience for tween’s with congenital upper limb differences as they navigate the social context?
Sub-Research Questions
SRQ 1: What is the tween’s experience when someone notices and makes comments about their limb difference?
SRQ 2: What is hard for tween’s with congenital limb differences when navigating social interactions?
SRQ3: What is easy for tween’s with congenital limb differences when navigating social interactions?
Objectives:
Objective 1:
To examine how tweens with congenital upper limb differences experience and respond when others notice and comment on their limb difference.
Objective 2:
To identify the challenges faced by tweens with congenital limb differences during social interactions.
Objective 3:
To explore the aspects of social interactions that are perceived as easy or manageable for tweens with congenital limb differences.
Eligibility Criteria:
Participants will include tweens aged 10–12 years with a congenital upper limb difference.
A congenital upper limb difference is defined as a visible difference in the appearance, form, and/or function of the upper limb present since birth, with the ability and the capacity to draw/sketch 2 pictures.
Both participants and their caregivers must communicate fluently in English.
Compensation Details:
Each participant will receive a $20 gift card
Enrollment Closes:
Aug 30, 2026
Time Commitment:
1 time session in person
Up to 2 hours
Contact Person:
Sarah Tuberty, email at stuberty@twu.edu
How to Participate:
Enroll here!
https://twu.qualtrics.com/jfe/form/SV_23LLL3H2dSGryUS
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