Study Title:
Analysis Of Access and Barriers to Care in Families with Child Amputees
Study Location:
Nationwide (remote participation through an online Qualtrics survey administered by the University of North Carolina at Chapel Hill)
Research Objectives:
Objective 1: To identify barriers to accessing healthcare services and specialty providers among individuals with limb differences and amputations and their families.
Objective 2: To assess experiences obtaining prosthetic devices, prosthetic information, and financial resources for prosthetic care.
Objective 3: To evaluate the utilization of support resources, including healthcare professionals, peer networks, support organizations, camps, and community programs.
Objective 4: To examine social experiences associated with limb differences and amputations, including peer support, community engagement, and experiences with bullying.
Objective 5: To evaluate participation in recreational and physical activities among individuals with limb differences and amputations.
Eligibility Criteria:
Adults (18 years or older) with a limb difference or amputation and parents or legal guardians of children with a limb difference or amputation. Participants must be able to complete an anonymous online survey in English.
Compensation Details:
Participants will not receive compensation for completing the survey.
Enrollment Closes:
May 31, 2027
Time Commitment:
Participants will complete a one-time anonymous online survey requiring approximately 10–15 minutes. No follow-up visits or additional study activities are required.
Contact Person:
Malvika Choudhari, malvika_choudhari@med.unc.edu
How to Participate:
Individuals who are interested in participating may access the anonymous online survey using the link below. Eligible participants will first review study information and provide electronic consent before completing the survey. The survey takes approximately 10–15 minutes to complete.
Survey Link: