CALL TO ACTION - National Pain Care Policy Act of 2005

CALL TO ACTION - National Pain Care Policy Act of 2005
Home ACA Names New Editor and Senior Editor Knoxville, TN. -- Rick Bowers and Bill Dupes, employees in the Publications Department of the Amputee Coalition of America (ACA), have been promoted to editor and senior editor, respectively. Shark-Attack Survivor Accepts National “Free Spirit” Honor Bethany Hamilton, a shark-attack survivor who overcame the loss of her left arm to return to the sport of surfing, has been acclaimed as a 2004 Free Spirit honoree. ADVOCACY UPDATE: Massachusetts Parity Bill ADVOCACY UPDATE: Estimate of Number of Persons Living with Limb Loss in NY State “The Best Thing in the World” Raised in a small, supportive community, Jaymie Kraus didn’t learn about the adversities and opportunities of people with limb differences until she became an adult Colorado - Prosthetic and Orthotic Adult Benefit Summary Providing Medicaid coverage for prosthetics saves money for states Massachusetts Financial Impact Statement for Prosthetic Coverage Review and evaluation of proposed legislation to mandate coverage for certain prosthetic devices: H. 837 Colorado - Prosthetic and Orthotic Adult Benefit Full Report Providing Medicaid coverage for prosthetics saves money for states. NY Parity Bill introduced to NY Senate & Assembly If we are to get these bills passed in this and other states we have to make a bigger noise than other groups also looking for mandates! APPLL Update: State Parity - May/June 2005 inMotion Bidding Demonstration: Setting the Record Straight for Prosthetic Consumers Do's and Don'ts of A Legislative Visit Steps to Effective Advocacy How Can I Get Help From My Congressional Representatives? ADVOCACY NEWS: Licensure vs. Certification: How It Can Affect You! Computerized Limb Coverage: A Letter to Practitioners and Bibliography The American Orthotic and Prosthetic Association (AOPA) has joined together with manufacturers of myoelectric and computerized devices, and beneficiary representatives, to work on reversing certain imprudent medical policies regarding coverage of these de The Power of Peers This article looks at the importance of peers in providing guidance and emotional support when faced with an amputation. Peer Visitor Support of Recent U.S. Military Amputees This article takes a look at the peer visitation program in place at the Amputee Center at Walter Reed Army Medical Center. Facing Amputation Surgery: The Value of Peer Contact This article talks about the value of peer support for amputees. Funding Raising for Your Support Group This fact sheet discusses support group member involvement in fundraising. Ideas for different types of fundraisers are included as well. Starting a Support Group: The Basics Starting a support group is a responsibility, a challenge, and a very meaningful experience. This fact sheet offers a listing of some basic steps needed to start a support group. Steps were compiled from successful support groups and organizations all ove Understanding ACA's Peer Network This fact sheet offers an explanation of ACA's national peer network. Details covered include the network's purpose and how it works, as well as the required training for peer visitors. Giving Back - Couples Who Peer Visit This article takes a brief look at couples that do peer visitation as part of the Amputee Coalition of America's National Peer Network. When Your Support Group Needs Support This article takes a brief look at resources for support groups. You Don't Have to Deal With Amputation Alone This article takes a brief look at the Amputee Coalition of America's National Peer Network. Peer Contact for Parents of Children with Congenital Amputation Karen Neimanas discusses the role of peer visitor when parents are confronted with the birth of a child with a congenital limb difference. Notes from the medical director: first and foremost, listen!: lessons learned from mentors and peer visitors Doug Smith, ACA Medical Director, discusses the important role that mentors can play in our lives and how a peer visitor can become a mentor. Communicator: Newsletter for amputee support group leaders This site contains links to both HTML and PDF versions of the Communicator newsletter published for amputee support group leaders. On-line communication resources for those with limb loss Resources for amputees or family members of amputees who would like to communicate with other amputees via Internet bulletin boards or e-mail lists. APPLL Executive Summary Learn about ACA's Action Plan for Persons with Limb Loss (APPLL) Advocating For Your Child ACA Announces New Publication for Parents The Amputee Coalition of America (ACA) is proud to announce the release of Expectations: Parenting Children and Teens With Limb Differences. This 36-page resource guide addresses some of the issues parents face after giving birth to a baby with a limb dif Cancer Was The Easy Part ACA Names New Staff Writer ACA announces the appointment of Scott McNutt as staff writer. A Circle of Friends - The Power of Peer Support The Prosthesis and Its Components - Choices, Choices and More Choices When to Help Your Child and When to Let Go A Message From the President & CEO Physical Activity Can Reduce Secondary Conditions in Youths With Limb Differences Building a Positive Body Image Prostheses for Children & Teens With Limb Differences - Issues and Expectations Questions to Ask Your Child's Doctor Resources ADVOCACY UPDATE: July/Aug 2005 inMotion ADVOCACY UPDATE: July/Aug 2005 inMotion Advocacy - NLLIC Topic of the Month - Nov. 2004 List of all advocacy related materials in the NLLIC onine catalog. Play golf with CT Legislators Ohio Parity Meeting Scheduled Taking a Bite out of APPLL: Paving the Way Toward Better Health The ACA is working to promote the importance of healthful living to people living with limb differences and healthcare professionals. Taking a Bite out of APPLL: Paving the Way Toward Better Health The ACA is working to promote the importance of healthful living to people living with limb differences and healthcare professionals. URGENT CALL TO ACTION for the National Limb Loss Information Center (NLLIC) URGENT CALL TO ACTION for the National Limb Loss Information Center (NLLIC) ADVOCACY UPDATE: Turning the Insurance Trend Around - InMotion Nov/Dec 2005 Whatever coverage our insurance plans are providing is in jeopardy. If the trend continues, we will have to pay more out of pocket for our future prosthetic devices. To prevent this scenario, we need to write letters to our state representatives about thi New Jersey Call to Action There are two bills in the New Jersey Legislature, Assembly Bill 2774 (A-2774) and Senate Bill 2752 (S-2752), which would revise the insurance law to require insurance carriers in the state to pay for Orthotic and prosthetic equipment using the same stand New Jersey Call to Action There are two bills in the New Jersey Legislature, Assembly Bill 2774 (A-2774) and Senate Bill 2752 (S-2752), which would revise the insurance law to require insurance carriers in the state to pay for Orthotic and prosthetic equipment using the same stand Good News in the Fight for Parity in New Jersey! New Jersey Parity Update Good News in the Fight for Parity in New Jersey! New Jersey Parity Update Support Insurance Coverage for Prosthetics in Iowa! This Thursday, February 16th, the Senate Commerce Committee will hold a discussion on the proposed Senate Study Bill (SSB) 1281, a study bill requiring healthcare benefit coverage for prosthetic devices. Working for Quality Care in Florida! On Wednesday, February 22, the Amputee Coalition of America (ACA) joined the Florida Association of Orthotists and Prosthetists (FAOP) for an exhibition in Tallahassee at the capitol to reach out to legislators and their staff to raise awareness about the APPLL Heads to Chicago! Working for Prosthetic Parity in Iowa! Last week, in the midst of a snowstorm, the Senate Commerce Committee held a hearing on the proposed Senate Study Bill SSB 1281, a study bill requiring healthcare benefits for prosthetic devices. Prosthetic parity moving to a Senate vote in Iowa! Prosthetic parity moving to a Senate vote in Iowa! People With Diabetes Need Your Help! S. 1955, also known as the Health Insurance Marketplace Modernization and Affordability Act, creates federal Association Health Plans (AHPs) that could jeopardize diabetes coverage for employees of small businesses, which is currently guaranteed in 46 sta Oppose Federal Attacks on Quality Healthcare Coverage! When the sponsors of the Health Insurance Marketplace Modernization and Affordability Act of 2005 (S. 1955) introduced the bill last November, they claimed that it would expand healthcare access. The sponsors have continued to make these claims as the bil Increased Funding Needed for Healthcare Research and Programs in FY 2007 – ACA Needs You to Call Today! This Wednesday, the House Budget Committee is scheduled to vote on the House Budget Resolution, which sets the overall funding allocations for all federal spending. As currently drafted, the House Budget Resolution CUTS funding for medical research and p Join the Effort to Enhance NIH Rehabilitation Research! The Amputee Coalition of America (ACA) is working with an alliance of 25 national organizations to raise the status of the National Center for Medical Rehabilitation Research (NCMRR) at the National Institutes of Health (NIH) to an Institute or independen Senate Bill 1955 Pushed Back As a result of the nearly 20,000 messages sent to the U.S. Senate by people like you opposing Senate Bill 1955, the vote will be postponed for another week or so. NY Prosthetic Parity Organizing Meeting 5/16 You are invited to a community information and organizing meeting to discuss prosthetic parity in New York! Celebrating Victory! The Amputee Coalition of America (ACA) has been working hard to oppose the Health Insurance Marketplace Modernization and Affordability Act of 2005 (S. 1955), and we are excited to announce that this bill was defeated in the Senate on May 11! Prosthetic Parity Hearing 6/12/06! Prosthetic Parity Moving Forward in Pennsylvania! Tennessee Parity Organizing Meetings The Amputee Coalition of America invites you to a series of community information and organizing meetings to discuss prosthetic parity in Tennessee! Oregon Parity Meeting The Amputee Coalition of America invites you to a community information and organizing meeting to discuss prosthetic parity in Oregon! CALL TO ACTION - Urge Gov. Schwarzenegger to support A.B. 2012 We could be just days away from comprehensive coverage for orthotic and prosthetic care in California, but we need your help! CALL TO ACTION - Urge Gov. Schwarzenegger to support A.B. 2012 We could be just days away from comprehensive coverage for orthotic and prosthetic care in California, but we need your help! APPLL Core: Access to Care, August 2006 APPLL update on prosthetic coverage in the U.S. APPLL Core: Access to Care, August 2006 APPLL update on prosthetic coverage in the U.S. Help Improve Access to Assistive Devices Call to action for the "Medicare Independent Living Act of 2006" (S.3677) and to improve Medicare's regulation of assistive devices. Help Improve Access to Assistive Devices Call to action for the "Medicare Independent Living Act of 2006" (S.3677) and to improve Medicare's regulation of assistive devices. Help Improve Access to Assistive Devices Call to action for the "Medicare Independent Living Act of 2006" (S.3677) and to improve Medicare's regulation of assistive devices. Help Improve Access to Assistive Devices Call to action for the "Medicare Independent Living Act of 2006" (S.3677) and to improve Medicare's regulation of assistive devices. Connecticut ADVOCACY UPDATE: Pennsylvania HB 2718 Hearing a Great Success! October 19, 2006 the Pennsylvania Health and Human Services Committee heard HB 2718, a bill requiring insurance companies to cover prosthetic devices and components. ADVOCACY UPDATE: Pennsylvania HB 2718 Hearing a Great Success! October 19, 2006 the Pennsylvania Health and Human Services Committee heard HB 2718, a bill requiring insurance companies to cover prosthetic devices and components. ADVOCACY UPDATE: ACA Activist Advocating Against Job Discrimination Dave Dunville, one of the leaders of the Michigan campaign for prosthetic coverage, is actively advocating for amputees' right to serve as firefighters. Stay informed by reading APPLL Core: Access to Care ADVOCACY NEWS: Activists Rally for Prosthetic Coverage Oregon Passes Important Amputee Healthcare Legislation After less than a year, Oregon just became the seventh state to sign parity into law. Prosthetic Parity Campaign Making Major Strides ACA's prosthetic parity campaign gains nationwide attention with 26 states making strides in the battle for coverage and a congressional bill in the beginning stages. ADVOCACY NEWS: ACA Working to Ensure that Amputees are Not Left Behind in Health Reform ADVOCACY NEWS: ACA Working to Ensure that Amputees are Not Left Behind in Health Reform ADVOCACY NEWS: ACA Signs on in Support of the Patient-Centered Outcomes Research Act of 2009 ADVOCACY NEWS: ACA Signs on in Support of the Patient-Centered Outcomes Research Act of 2009 OPAF Launches McKeever’s First Ride ADVOCACY NEWS: Senate HELP Protects Access to Assistive Devices ADVOCACY NEWS: Senate HELP Protects Access to Assistive Devices ADVOCACY NEWS: ACA and Partners Applaud the Inclusiveness of the Affordable Health Choices Act ADVOCACY NEWS: ACA and Partners Applaud the Inclusiveness of the Affordable Health Choices Act Connecticut: Vote on Monday. Take action TODAY! ADVOCACY NEWS: ACA Celebrates Progress in the Campaign for Hate Crimes Protections for People with Disabilities ADVOCACY NEWS: ACA Celebrates Progress in the Campaign for Hate Crimes Protections for People with Disabilities Amputee Coalition Youth Camp Shows Young Amputees That They Can Do Anything, Anywhere Donate now and help support this inspirational program ADVOCACY NEWS: ACA Joins Allies in Pushing for Patient Centered Approach to Comparative Effectiveness Research ADVOCACY NEWS: ACA Joins Allies in Pushing for Patient Centered Approach to Comparative Effectiveness Research ADVOCACY NEWS: Progress in the Efforts to Protect Assistive Devices in Healthcare Reform ADVOCACY NEWS: Progress in the Efforts to Protect Assistive Devices in Healthcare Reform ADVOCACY NEWS: Progress and Problems in the Campaign for Hate Crimes Protections for People with Disabilities ADVOCACY NEWS: Progress and Problems in the Campaign for Hate Crimes Protections for People with Disabilities Double amputee loses legs, finds a cause HEALTH CARE REFORM: Call your members today! HEALTHCARE REFORM: Take action during the August recess! ADVOCACY NEWS: ACA Seeks Government Relations Specialist to Help Lead Policy Efforts ADVOCACY NEWS: ACA Seeks Government Relations Specialist to Help Lead Policy Efforts ADVOCACY NEWS: ACA Partners With AOPA and Hanger to Call for True Healthcare Reform ADVOCACY NEWS: ACA Partners With AOPA and Hanger to Call for True Healthcare Reform Winslow Therapeutic Riding to Host McKeever’s First Ride TAKE ACTION TODAY! Push for true healthcare reform! Members of Congress Receive Legislative Awards From National Amputee Organizations Ossur Commits $20,000 to Amputee Coalition of America’s Parity Campaign Ossur Commits $20,000 to Amputee Coalition of America’s Parity Campaign Amputee Coalition of America's Paddy Rossbach Youth Camp Announced Knoxville, TN, October 9, 2009 – The Amputee Coalition of America announced that it has named its youth camp in honor of the organization’s former president & CEO, Paddy Rossbach. Amputee Coalition of America's Paddy Rossbach Youth Camp Announced Knoxville, TN, October 9, 2009 – The Amputee Coalition of America announced that it has named its youth camp in honor of the organization’s former president & CEO, Paddy Rossbach. Get Ready for National Family Caregivers Month in November November 2009 celebrates National Family Caregivers Month, a time to thank, support, educate and empower family caregivers – those individuals providing care to loved ones living with chronic illness, disability or the frailties of old age. Mending Limbs Organization to Hold Second Annual Benefit Concert Event to raise awareness of need for adequate prosthetic insurance coverage for amputees	December 7, 2005 Dear ACA Volunteer: The Amputee Coalition of America has signed a statement of support for the National Pain Care Policy Act of 2005 (H.R. 1020) and the pain issues it addresses. There is now an immediate action opportunity for all of us to get the attention of Congress! The House Subcommittee on Health will hold a hearing, Thursday, December 8th at 10 a.m. at 2123 Rayburn House Office Building, entitled "Improving America's Health: Examining Federal Research Efforts for Pulmonary Hypertension and Chronic Pain." How can you help? Contact your Congressional Representatives, especially members of the Subcommittee on Health, and encourage them to attend this hearing. You can contact your Representative about this hearing by connecting to the American Pain Foundation’s Advocacy Center at www.painfoundation.org/page.asp?file=Action/intro.htm Attend the hearing! If you are able to travel to Washington, D.C. on Thursday, we are encouraging as many pain patients, advocates and professionals as possible to attend the hearing. Please contact Michelle Lonchar of the American Pain Foundation at 410/783-7292 ext. 306 or via e-mail at MLonchar@PainFoundation.org if you plan on attending. Send this notice to your friends and family and ask them to contact their Representatives too! It is vitally important for Congress to hear from everyone who is concerned about improving pain care in America. The time to act is NOW. Please don’t let this opportunity slip away. We may not get another chance to stress how the undertreatment of pain, as a national health crisis, is causing undue suffering all around us. The ACA is partially supported by cooperative agreement No. E11/CCE419270 from the National Center on Birth Defects and Disabilities, Centers for Disease Control and Prevention (CDC). The contents of this message are solely the responsibility of the authors and do not necessarily represent the official views of the CDC, the sponsoring organizations, or the Amputee Coalition of America (ACA). This information and activity is funded by the ACA and not supported with CDC grant funding.
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