ADVOCACY NEWS: ACA Joins CCD in Calling for the Addition of Prosthetic Devices to the "Affordable Health Choices Act"


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The following letter was submitted by the Consortium for Citizens with Disabilities (CCD), of which the ACA is a member, to the Senate HELP Committee in response to the "Affordable Health Choices Act". 

 

 

 June 18, 2009

 

The Honorable Edward M. Kennedy

Chairman

Health, Education, Labor, and

   Pensions Committee

United States Senate

Washington, D.C. 20510

 

The Honorable Michael Enzi

Ranking Member

Health, Education, Labor, and

   Pensions Committee

United States Senate

Washington, D.C. 20510

 

Dear Senators Kennedy and Enzi:

 

            Re:  Affordable Health Choices Act

 

The following members of the Health and Long Term Services and Supports Task Forces of the Consortium for Citizens with Disabilities (CCD) are writing to express our strong support for the draft proposal to reform our nation’s health care system.  The Affordable Health Choices Act represents a positive sea change that will significantly improve access to health and long term services and supports for people with disabilities and chronic conditions.

 

CCD, a coalition of national consumer, service provider and professional organizations, advocates on behalf of persons with disabilities and chronic conditions and their families. We believe that the goal of health care reform should be to assure that all Americans, including people with disabilities and chronic conditions, have access to high quality, comprehensive, affordable health care that meets their individual needs and enables them to be healthy, functional, live as independently as possible, and participate in the community. The proposal released last week goes a long way toward meeting that goal.

 

Many of the proposal’s provisions will greatly improve the lives of people with disabilities and chronic conditions.  We highlight a few to underscore their importance:

 

Insurance Market Reforms:

 

The proposals provisions in this area truly represent a sea change in the private health insurance market.   In particular we are extremely pleased that the following is included:

 

  • Requiring guaranteed issue and guaranteed renewal of coverage in the individual and small group markets;
  • The prohibition of pre-existing health condition exclusions as well as restrictions to prohibit the use of health status in determining premium rates; and
  • The prohibition of annual and lifetime insurance caps and limits on out of pocket spending.

 

Benefits Categories

 

We greatly appreciate the Committee’s recognition of  people with disabilities’ needs in the benefits categories set forth in this proposal. We understand that the proposal includes Durable Medical Equipment, Orthotics, Prosthetics and Supplies (DME/POS) in addition to rehabilitative, habilitative, and mental health and substance abuse services -- all of which are critical to enabling people with disabilities to function independently.

 

 

Prevention, Accessibility, Workforce Training, and Health Disparities:

 

We are especially pleased that the proposal includes the following:

 

·         Authorization of $10 billion to establish a Prevention And Public Health Investment Fund ;

·         Community Transformation Grants that  include focus on the needs of individuals with disabilities;

·         Development of standards for accessible medical diagnostic equipment;

·         Inclusion of disability status within data collection on health disparities along with race and ethnicity; and

·         A priority for training programs for primary care providers and dentistry on how to treat individuals with disabilities.

 

Community Living Assistance Supports and Services (CLASS) Act

 

We applaud the inclusion of the CLASS Act in the Affordable Health Choices Act. For persons with disabilities and chronically ill older Americans – arguably the most vulnerable populations in the nation – long term services and supports are their primary unmet care need, and are critical to promoting health and preventing illness.  The landmark CLASS Act is the threshold to meaningful change ensuring that individuals are able to function as independently as possible within their homes, families, and their communities.  We believe it is imperative that this provision be retained as the Committee’s legislation moves forward.

 

Thank you for your leadership on these critical issues.  We look forward to working with you and your staff to secure passage of meaningful and comprehensive health reform legislation that meets the needs of all Americans this year.

 

Sincerely,

 

 

ACCSES

American Academy of Physical Medicine and Rehabilitation

American Association of People with Disabilities

American Association on Health and Disability

American Association on Intellectual and Developmental Disabilities

American Medical Rehabilitation Providers Association

American Network of Community Options and Resources

American Occupational Therapy Association

American Therapeutic Recreation Association

Amputee Coalition of America

Association of University Centers on Disabilities

Autism Society of America

Bazelon Center for Mental Health Law

Brain Injury Association of America

Burton Blatt Institute

Council for Learning Disabilities

Council of State Administrators of Vocational Rehabilitation

Disability Rights Education and Defense Fund

Easter Seals

Epilepsy Foundation

Higher Education Consortium for Special Education

Learning Disabilities Association of America

Lutheran Services in America

Mental Health America

National Alliance on Mental Illness

National Association for the Advancement of Orthotics and Prosthetics

National Association of Councils on Developmental Disabilities

National Association of State Directors of Developmental Disabilities Services

National Association of State Head Injury Administrators

National Council for Community Behavioral Healthcare

National Council on Independent Living

National Disability Rights Network

National Down Syndrome Congress

National Down Syndrome Society

National Multiple Sclerosis Society

National Rehabilitation Association

National Respite Coalition

National Spinal Cord Injury Association

Paralyzed Veterans of America

TASH

Teacher Education Division of the Council for Exceptional Children

The Arc of the United States

United Cerebral Palsy  

United Spinal Association

World Institute on Disability

 

For additional information, please contact any of the individuals below.

 

CCD Health Task Force Co-Chairs

 

  • Mary Andrus, Easter Seals, (202) 347-3066          Tim Nanof, American Occupational Therapy Association, (301) 652-6611 Ext. 2100
  • Angela Ostrom, Epilepsy Foundation of America, (301) 918-3766
  • Peter Thomas, American Academy of Physical Medicine & Rehabilitation, (202) 466-6550
  • Liz Savage, The Arc of the United States and United Cerebral Palsy, (202) 783-2229

 

CCD Long Term Services and Supports Co-Chairs

 

  • Joe Caldwell, Association of University Centers on Disabilities (301) 588-8252
  • Marty Ford, The Arc and United Cerebral Palsy (202) 783-2229
  • Suellen Galbraith, American Network of Community Options and Resources (703) 535-7850
  • Lee Page, Paralyzed Veterans of America (202) 416-7694
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