In order to better serve people with limb loss, their families, and their healthcare teams, the Amputee Coalition of America (ACA) is surveying parents and professionals for their opinions on the quality of one of our newest publications, Expectations: Parenting Children and Teens With Limb Differences.

Published in April 2005, Expectations is a comprehensive resource guide for parents and caregivers of young amputees that addresses a variety of topics of interest to parents, including adjustment issues, prosthetics, funding, peer support, advocacy, insurance reimbursement, technology, and prevention of secondary conditions. It also includes several useful resource lists and links to other youth organizations.  Expectations is available as a free download from the ACA Web site at www.amputee-coalition.org/expectations.html.

This survey will take less than five minutes to complete and is available online at www.amputee-coalition.org/aca_surveys.html.  Paper copies of the survey are also being mailed out to those who have requested Expectations in the past, and should be returned to the ACA no later than Friday, April 28, 2006.

Knowing how both families and professionals feel about our work is important to ACA’s mission of empowering people with limb loss through education, support and advocacy.  With your help, the information gathered from this survey will be used to determine what is considered interesting or useful and what could be improved to best meet the needs of parents and professionals in future publications.

The ACA respects your right to privacy; all responses will be confidential.  The results of this survey will be published in the July/August issue of inMotion and posted on our Web site at www.amputee-coalition.org.

If you have any questions regarding this survey, please call Susan Tipton at 888/AMP-KNOW (267-5669).

Founded in 1986, the Amputee Coalition of America (ACA) is a national 501(c)(3) nonprofit organization headquartered in Knoxville, Tennessee. The mission of the ACA is to reach out to people with limb loss and to empower them through education, support and advocacy. Through a cooperative agreement with the Centers for Disease Control and Prevention (CDC), the ACA maintains the National Limb Loss Information Center (NLLIC), the nation's most comprehensive source of information for people living with limb differences. For more information, visit www.amputee-coalition.org or call toll-free 888/AMP-KNOW.

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